Canine Distemper Virus: An Emerging Disease in Rare Amur Tigers – Science Daily (press release) + MORE

Notre Dame alumni raise awareness of rare diseaseMoultrie NewsThe Notre Dame Alumni Club of Charleston is sponsoring three events July 26-28 to raise awareness of a rare neurodegenerative disease, Nieman-Pick Type C, that took the lives of three of Coach Ara Parseghian's grandchildren. In support of the medical …

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Canine Distemper Virus: An Emerging Disease in Rare Amur TigersScience Daily (press release)13, 2013 — Rare Amur tigers in Russia are succumbing to infection with canine distemper virus (CDV), a pathogen most commonly found in domestic dogs, according to the authors of a study published in mBio®, the online open-access journal of the …

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Rare brain disease wipes out all of teenager's childhood memories – Mirror.co.uk

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Mirror.co.ukRare brain disease wipes out all of teenager's childhood memoriesMirror.co.ukA teenager is having to piece together her past using photographs after a rare brain disease wiped all of her childhood memories. Rosie Paley was 16 when she contracted encephalitis and suffered a huge fit – leaving her unable to remember her past…

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Three cases of rare tick-borne disease reported in Chester CountyPhilly.comCHESTER COUNTY health officials are investigating three reported cases of a rare, sometimes fatal tick-borne disease, including one person in serious condition. The disease is called babesiosis, an infection caused by microscopic parasites that infect …

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Burlington teen who overcame rare disease wins award – Torrington Register Citizen + MORE

Three cases of rare tick-borne disease reported in Chester CountyPhilly.comCHESTER COUNTY health officials are investigating three reported cases of a rare, sometimes fatal tick-borne disease, including one person in serious condition. The disease is called babesiosis, an infection caused by microscopic parasites that infect …

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Canine distemper virus: An emerging disease in rare Amur tigersPhys.OrgRare Amur tigers in Russia are succumbing to infection with canine distemper virus (CDV), a pathogen most commonly found in domestic dogs, according to the authors of a study published in mBio, the online open-access journal of the American Society for …

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Montreal GazetteTreatment approved for St. Albert toddler with rare diseaseSt. Albert GazetteTreatment has been funded in provinces including British Columbia, Saskatchewan, Ontario, and Quebec, but was denied by Alberta Health under the Alberta Rare Diseases Funding Program. “The past few weeks have been very difficult for us, but we can …

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Kids with rare premature aging disease meetWashington PostParents who share such experiences — because their children have Cockayne syndrome, a rare genetic disease — recently gathered with their families in Alexandria so their kids could meet others like themselves. Scientists and researchers joined them …

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Saudi GazetteNeglected victims of rare disease find help in SudanSaudi GazetteNeglected victims of rare disease find help in Sudan. Patients are treated at the Sudan's Mycetoma Research Centre on August 5 in the southern Khartoum district of Soba. — AFP. KHARTOUM — Behind the brick walls of the Mycetoma Research Centre …

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The Boyne City GazetteRare disease inspires good causeThe Boyne City GazetteThe event and concept came from Boyne City Local Rob Swartz's passion for endurance sports and his most recent experience with a recurring rare illness just over one year ago. After his first brush with the disease in 2006, it was suspected that Swartz …

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Burlington teen who overcame rare disease wins awardTorrington Register CitizenAccording to a press release issued by the foundation, Bodnar was honored for his positive attitude surrounding his rare disease called short bowel syndrome and his daily doses of HEN therapy that lasts 18 hours a day. “I have never let my short bowel …

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Rare disease research has financial payoff, tooOCRegister (subscription)It may be difficult to understand in purely economic terms why investors choose to fund research on diseases that affect such small populations and wouldn't generate enough of a market to justify drug development. Still, there has been a surge of …

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Woman struggles to cope with rare disease – Seacoastonline.com

Woman struggles to cope with rare diseaseSeacoastonline.comMindy Puckett of Portsmouth, talks about her diagnosis of Wegener's granulomatosis, an uncommon disorder that causes inflammation of your blood vessels, that came right after a fight with breast cancer. Treatment is both painful and very expensive due …

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Sherman Firefighters Collect Donations To Fight Rare Disease – KTEN + MORE

Sherman Firefighters Collect Donations To Fight Rare DiseaseKTENProgramming Schedule. Sherman Firefighters Collect Donations To Fight Rare Disease. Posted: Saturday, August 10, 2013 11:44 AM EST. By Alex Belser, Reporter – email. Texoma HeadlinesMore>> · Sherman Firefighters Collect Donations To Fight Rare …

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Biotechs push to save tax credit for rare-disease medicine makersBoston HeraldSome of the Bay State's biggest biotech companies are teaming up with drug makers and patient advocacy groups across the country to wage battle to protect the crucial federal tax credit that provides a key incentive for pharmaceutical companies to …

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Kids with rare premature aging disease meet in Va. – Sioux City Journal + MORE

Benefit Planned For Woman Dealing With Rare DiseaseJamestown Post JournalMojo's will be hosting a benefit Sunday for a local woman who was diagnosed with a rare illness during a family vacation. Anne (Heidorn) VanDerwalker was recently diagnosed with Guillain-Barre Syndrome, something that affects roughly one out of every …

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Idan Zablocki, Baby Boy With Rare Immune Disorder, May Be Cured Thanks To …Medical DailyHaving a sick child is a harrowing experience, but discovering that your child has a rare and fatal immune disorder that leaves him unable to fight off infections is one of the worst things that can happen to a parent…

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Kids with rare premature aging disease meet in Va.Sioux City JournalParents who share such experiences because their children have the rare genetic disease Cockayne syndrome recently gathered with their families near Washington so their kids could meet others like themselves. Scientists and researchers joined them to …

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Tolvaptan, Otsuka's Rare Kidney Disease Drug, Gets Shot Down By FDA … – Medical Daily + MORE

Medical DailyTolvaptan, Otsuka's Rare Kidney Disease Drug, Gets Shot Down By FDA …Medical DailyThe drug, sold by Otsuka Pharmaceuticals of Japan, has been put through clinical trials to treat autosomal dominant polycystic kidney disease (ADPKD), a rare disease in which the kidneys essentially grow hundreds of cysts, resulting in kidney failure.

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MiamiHerald.comWynn donates $25 million for rare eye disease researchMyNews3 Las Vegas KSNVIOWA CITY, Iowa (AP) — Las Vegas casino owner Steve Wynn is donating $25 million to the University of Iowa to accelerate the search for cures to rare eye diseases such as the one that hampers his own vision. The billionaire chairman and CEO of Wynn …

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Blood drive to raise awareness of rare diseases – SouthCoastToday.com + MORE

Calgary HeraldAleena Sadownyk, Alberta Girl With Rare Disease, Awaits Word On Treatment …Huffington Post CanadaHe said the Sadownyk family was denied funding under the rare diseases program because the drug didn't qualify as it had not received general market approval through Health Canada. The disease is called MPS VI, or Maroteaux-Lamy syndrome…

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Tolvaptan, Otsuka's Rare Kidney Disease Drug, Gets Shot Down By FDA …Medical DailyThe drug, sold by Otsuka Pharmaceuticals of Japan, has been put through clinical trials to treat autosomal dominant polycystic kidney disease (ADPKD), a rare disease in which the kidneys essentially grow hundreds of cysts, resulting in kidney failure.

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Fundraiser For Carterville Toddler Battling Rare DiseaseWSIL TVStory Updated: Aug 7, 2013 at 8:42 AM CDT. CARTERVILLE — A toddler from Carterville is battling a rare kidney disease, and this weekend there's a fundraiser to help him out. Justice Williams has been diagnosed with atypical Hemolytic Uremic Syndrome.

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Blood drive to raise awareness of rare diseasesSouthCoastToday.comNEW BEDFORD — In an effort to raise awareness, the Rare Disease Awareness Network will host its third blood drive from 1:30-7 p.m. Aug. 21 at the Southcoast Blood Bank at St. Luke's Hospital, 101 Page St. Between 1:30 and 2:30 p…

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Kids with rare premature aging disease meet in Va. – USA TODAY + MORE

ABC News2-year-old best man dies of rare genetic diseaseUSA TODAYLogan Stevenson, the 2-year-old boy suffering from a rare genetic disease who served as best man at his parents wedding, has died, his mother said in a Facebook posting. Christine Swidorsky married Logan's father, Sean Stevenson, on Saturday in …

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Calgary HeraldAlberta girl with rare disease awaits word on funding from provinceCalgary HeraldHe said the Sadownyk family was denied funding under the rare diseases program because the drug didn't qualify as it had not received general market approval through Health Canada. The disease is called MPS VI, or Maroteaux-Lamy syndrome…

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TelemanagementKids with rare premature aging disease meet in Va.USA TODAYParents who share such experiences because their children have the rare genetic disease Cockayne syndrome recently gathered with their families near Washington so their kids could meet others like themselves. Scientists and researchers joined them to …

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Kids with rare premature aging disease meet in Va. – USA TODAY + MORE

Rare disease can be misdiagnosed as lymphomaSTLtoday.comAnswer • Kikuchi-Fujimoto disease is a rare disease (I have never seen a case) of unknown cause, first reported in Japan but present in every ethnic group. It is thought to be caused by a virus, but that has never been proven. The major symptoms are …

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Struck down by rare diseaseStuff.co.nzAfter weeks in hospital and lots of uncertainty, my husband is finally home with his family. Derek was diagnosed with prostate cancer in May 2012. He had surgery the following September and it was a success. He is now cancer free. What we didn't know …

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Rare disease prematurely ages kidsWashington PostRare disease prematurely ages kids. 01:28. August 5 2013 8:07 AM EDT — Families of children with cockayne syndrome, a rare disorder characterized by premature aging, met at a yearly conference. (AP) …

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TelemanagementKids with rare premature aging disease meet in Va.USA TODAYParents who share such experiences because their children have the rare genetic disease Cockayne syndrome recently gathered with their families near Washington so their kids could meet others like themselves. Scientists and researchers joined them to …

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Rare Disease Sometimes Misdiagnosed As Lymphoma – Valley News + MORE

The NationPlan for database on rare lysosomal diseaseThe NationHUNDREDS of people in Thailand suffer from lysosomal storage diseases (LSDs), but physicians see the need for a proper database to help prevent the rare inherited metabolic disorders, which cause grave financial and mental stress for patients and their …

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5 of the World's Most Ultra-Rare DiseasesMotley FoolThere are few times when your doctor or physician will utter the phrase, "I don't know" to a patient, but when you're dealing with the rarest of diseases, then all bets are off. According to the Food and Drug Administration, a rare disease or disorder …

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Doctors say plant likely culprit of rare diseaseThe AdvocateDoctors don't know why eating crawfish or buffalo fish sometimes causes the rare muscle-destroying illness that recently sickened three members of one Mississippi family. But they believe Haff disease is caused by eating bottom-feeders that have eaten …

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Rare Disease Sometimes Misdiagnosed As LymphomaValley NewsAnswer: Kikuchi-Fujimoto disease is a rare disease (I have never seen a case) of unknown cause, first reported in Japan but present in every ethnic group. It is thought to be caused by a virus, but that has never been proven. The major symptoms are …

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SunHerald.comDoctors: Water hemlock eaten by buffalo fish likely culprit of rare diseaseSunHerald.comNEW ORLEANS — Doctors don't know why eating crawfish or buffalo fish sometimes causes the rare muscle-destroying illness that recently sickened three members of one Mississippi family. But they believe Haff disease is caused by eating bottom-feeders …

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